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Families and Communities Together (FACT) Relief

We bring communities, friends, families and loved ones together for a common purpose.

2023 Spring Newsletter

 

THE 2023 QUIET HERO PARTY

What a feeling it was to be in the room as this year's Quiet Hero, Ben "BB" Brandenburg, delivered an inspiring message of hope, while reminding us how important it is to carry the mat for each other.  We have linked his speech here and encourage you to share his story with family and friends.

 

A diagnosis of ALS is beyond overwhelming. BB and his wife Mobley lead by example when it comes to finding ways to live in the face of a terminal diagnosis. They remain strong in their faith and are learning to lean on a community that loves them and wants to help support them and their two girls.

It’s been eight years since we first held this fundraiser, and we continue to be humbled year-over-year by people like you that remain supportive of our mission. YOU are a huge part of what makes this event successful, and you are helping to make a difference in the day-to-day needs of those living with ALS.

Thank you again for your support. We can’t wait to see what Quiet Hero Party 2024 has in store!  

 

Thank you, DGD Fund.
Go DAWGS!

Not a dry eye in the place.

Another SOLD OUT night!

 
 

He may be our Quiet Hero, but BB Brandenburg continues to use his voice to ignite and inspire others.

BB and co-host Daniel Moss recently launched a podcast called Carry the Mat. Along with producer/editor Elizabeth Collier Moss, their first podcast/video of Carry the Mat, they interviewed Sanford Stadium PA announcer Brook Whitmire "The Voice of the Dawgs" discussing his experiences as a lifelong Dawgs fan. Brook talks about how to add value and grow where you're planted.

They've lined up Mark Richt and other big names for future interviews. Check it out on Apple Podcasts, Spotify, and YouTube! Follow on Instagram as well @carrythemat.

 

BENEFICIARY SPOTLIGHT

Joe Kelliher

In 2010, Joe Kelliher dealt with a family tragedy in the form of a disease, Multiple Sclerosis, (MS), which is a disabling neurological disorder. MS inhibits the signals from the brain from reaching the rest of the body, which results in a significant impact on an individual's mobility and daily functioning. Joe was diagnosed with the rarest form of the disease, Primary Progressive Multiple Sclerosis (PPMS), for which there is currently no cure. This diagnosis changed the course of Joe and his family's lives forever. 

At the beginning of last year, Joe was faced with yet another obstacle, recovering from a nearly fatal wheelchair accident. This resulted in a ninety-day ICU hospital stay and classified him upon discharge as a triplegia; only being able to use one limb. Due to the unexpected extreme progression of his disease caused by this accident, Joe now requires 24-hour intense home health care. Joe’s daily care assistance includes physical therapy, occupational therapy, bathing, touting, transferring, dressing, cleaning, cooking, transportation, and more. 

Joe and his three children, Lauren, Natalie, and Brooke, have learned to face challenges in life with a mixture of courage, grit, and good judgment. They now understand life is full of adversity, but what matters is how you face adversity, for that is what makes you successful. They’ve also come to realize that the minor issues are just that – minor. Click the button below to donate in support of Joe and his family. 

Thank you!

 
 

MORE HOPE FOR THE ALS COMMUNITY!

 
 

Tofersen, now known as Qalsody, has received conditional approval from the US Food and Drug Administration (FDA) for the treatment of amyotrophic lateral sclerosis (ALS) linked with SOD1 gene mutations. Biogen’s tofersen is the second ALS treatment that has been approved in past year, and the third in the past six years, bringing more and more hope to the ALS community.

The decision was made approximately eight months after the regulatory agency accepted the application for review under its accelerated approval pathway, which enables the FDA to grant conditional marketing authorization to drugs based on preliminary clinical trial data indicating a probable benefit.

While there is still a long road to finding a cure for ALS, this is certainly another step in the right direction and something to celebrate, as it is the first gene-based therapy to be approved for ALS.

 
 

DOES YOUR COMPANY GIFT MATCH?

Did you know that you might be able to double or even triple your donation to FACT Relief through donation-matching options from your company?

Many companies offer these options to encourage their employees to give to non-profit organizations. If your company offers donation matching, every dollar you donate to FACT Relief could turn into two or three dollars to help us support families in need. Similarly, some companies will make a monetary contribution to match volunteer hours.

Reach out to your HR department to find out about your company's gift matching program. Most companies that participate have a form that must be completed, and many can be done online.

 

Please share this with family and friends!

 

Families & Communities Together Relief
2246 Roswell Road,  | Marietta, Georgia  30062
(404) 566-4980 | kfoster@factrelief.org

 
 
 
 
 
 
 
 
 
 
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